Can you say HIV? Stigma in the United States - Instablogs
Can you say HIV? Stigma in the United States
Rolande Hodel , Ossining: Jun 12 2008
Made Popular Jun 12 2008
United States :

Can you say HIV? Stigma in the United StatesWhat would you do if a close friend disclosed his/her HIV-positive status to you today? Jessica Kim, who wrote this piece on HIV and Stigma is one of the volunteers generously supporting AIDSfreeAFRICA with her time, talent and expertise. She will be contributing more of her opinions and wisdom on this blog.

Watch AIDS: Dangerous Silence, a 28-minute documentary exploring how silence can change a community. Created in 2007 by WNED, the Western New York Public Broadcasting Association worked in collaboration with AIDS Community Services located in Buffalo, NY. It has now been incorporated as part of the HIV education in the Buffalo Public School system, probably one of the most comprehensive programs in the United States.

Having worked around issues of sexual health including HIV, I (Jessica) have become immune to the barrage of questions that come with the job description. “Do you have extra condoms I could use?” “What’s it like getting tested for sexually transmitted infections?” “How does vaginal sex increase risk of HIV transmission?” When I was twelve, I discovered that my friend lived with her single mom, whose husband had left her a long time ago. With parents of my own who were happily married, I withheld the gasp I was about to let out and said the only thing I could think to say: “I’m sorry.” We never talked about it again. You’re thinking that it was a silly reaction on the part of my twelve-year-old self.

So, what would you do? Yes, single motherhood is a vastly different situation than the daunting prospect of living with HIV. However those in both situations face social stigma. In an increasingly politically correct world, sometimes we choose silence over facing a subject that may make us uncomfortable. But with HIV, silence is dangerous.

Those living with HIV may find themselves humiliated, eventually declining further medical support due to fear of disclosure. Others are unaware of their status because they would rather not know. Why would they as long as HIV is still perceived as a death sentence? According to the Centers of Disease Control, 1 in 4 people with HIV in the United States at the end of 2003 were unaware of their infection, with the potential to spread the virus to those they love. However with modern medicine, HIV is not necessarily a death sentence anymore, transmission between partners can be prevented, and mothers can have healthy babies without passing the virus on. We are more than 25 years from the inception of HIV, and yet stigma still lurks the dark mystery that is HIV/AIDS. As volunteers for AIDSfreeAFRICA, we generate discussions about the impediments to decreasing infection and mortality rates in Africa such as access to drugs and unemployment. Let’s talk about it.

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1 Stars
Neha Mahajan nehamahajan.instablo..
New Jersey, United States
It is hard to see such things still happening even after years of struggle and awareness campaigns. We live in a society that boasts of education and open mindedness and alo equality to every life.
I congratulate you on bringing this issue up again and letting all of us know what pain and dilemma the patient goes thru.. and by getting more aware about it, may be we can help reduce the emotional pain!
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Sanwali
Shimla, India
More the awareness is spread on AIDS in the society, less are the chances of misunderstandings and the discrimination. People who are victim to this disease are in a desperate need of help and there should be certain guidelines which can help them to get a proper medication for themselves in order to lead a better life that they deserve.
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Grace Calderon
Quezon City, Philippines
At this point, there is something more than awareness and education on AIDS that is imperative. We have gone past the time when ignorance is what kills the afflicted. There is something that was left behind in the march towards awareness of the disease.

Today, the silence brought about by shame, which in turn, is brought about by the stigma, is what’s killing the victims. The afflicted still chooses to keep the condition under wraps.

People created that stigma.

A judgemental society, bursting at the seams with arrogance and bias of every form, is what’s killing the victims of AIDS!
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Scott
Brooklyn, United States
yes it is. AIDS is still an epidemic insurmountable. once effected with is a guarantee that the person will meet the premature death as there are hardly any measures that can cure the ghastly disease.
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Dale
Pretoria, South Africa
No that is not exactly the case all the time. I have several friends who have been HIV positive for over 20 years and whose AIDS as such hasn't yet manifested. even though I again the one who have lost several friends through AIDS, some got it from blood-transfusions, others from their unprotected gay sexual activities, and others who were drug-addicts and got it from sharing dirty needles.
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Brett
Calgary, Canada
yes Dale is right when say "not all the times", but it is more often than not. but here I would add surely that if it is not the death sentence it is surely the debt sentence. the treatment is too expensive and is only life-prolonging, not a full cure. so that depends on the available treatments and if the person affected could afford it or not.
(Global Perspectives)
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Shaun
Los Angeles, United States
Sure, AIDS treatment is expensive, but the question is do we have alternative? and the sorry answer is, no. one of my relative faced a similar situation, he used all his money and insurance and then went on Medicare until he died. I don't think he was thinking about blowing his retirement or going into debt as he was slowly dying - the medications basically gave him an extra 8-10 years of life he wouldn't have had otherwise. with these we can buy our near and dear one some time to live lo live longer even when they are destined to...
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Earnest
Pretoria, South Africa
I agree with everyone above, however, the HIV/Aids drug battle is not always about money. Some drug companies have offered at least some of the best drugs free for prevention of mother to infant transmission in developing countries. Yet there are organized groups who attempted to convince the government of South Africa not to participate in these programs. These groups variously claim that HIV does not exist, or that HIV is harmless and that Aids is a "lifestyle" disease.
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Rolande Hodel AIDSfreeAFRICA.org
Ossining, United States
Thank you for your comments and thank you Instablog staff for restoring the title and taking the picture out.
The whole point is that HIV/AIDS is not a disease of old, black, male, but young women of color, black or latina. AIDSfreeAFRICA volunteer JEssica Kim has her work cut out for herself, and I am excited that she is so determined to hit the road and teach about HIV/AIDS and Stigma at a time when I thought we surely had past that point. Oh, no we sure did not.
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